Metabolics
The Nutricia Learning Center features tools and educational resources for Metabolic Healthcare Professionals.
Patient Resources
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MSUD Formula & Diet Record – Fillable PDF
This diet record tool can help patients keep track of food and formula consumption leading up to a clinic appointment or before blood work. It can also be used to help patients keep track of leucine/ protein intake day-to-day. Download the fillable PDF version here or request printed booklets from your Territory Manager.
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MSUD Emergency Planning Worksheet
Even minor illnesses can quickly escalate into emergency situations for people with MSUD, and so it’s important to be prepared. The front of this worksheet provides general tips for managing an emergency situation, and the back can be filled out with health information. Download here or request printed copies from your Nutricia Territory Manager.
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TEMPLE Educational Tools for Caregivers - Phenylketonuria (PKU)
Tools Enabling Metabolic Parents Learning are books and videos designed to help you provide simple education for the caregivers of your newly-diagnosed patients with inherited metabolic diseases. Resources also available to your patients on medicalfood.com. Available in English, Spanish and French.
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TEMPLE Educational Tools for Caregivers - Glutaric Acidemia Type 1 (GA-1)
Tools Enabling Metabolic Parents Learning are books and videos designed to help you provide simple education for the caregivers of your newly-diagnosed patients with inherited metabolic diseases. Resources also available to your patients on medicalfood.com. Available in English, Spanish and French.
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TEMPLE Educational Tools for Caregivers - Maple Syrup Urine Disease (MSUD)
Tools Enabling Metabolic Parents Learning are books and videos designed to help you provide simple education for the caregivers of your newly-diagnosed patients with inherited metabolic diseases. Resources also available to your patients on medicalfood.com. Available in English, Spanish and French.
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TEMPLE Educational Tools for Caregivers - Homocystinuria (HCU)
Tools Enabling Metabolic Parents Learning are books and videos designed to help you provide simple education for the caregivers of your newly-diagnosed patients with inherited metabolic diseases. Resources also available to your patients on medicalfood.com. Available in English, Spanish and French.
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TEMPLE Educational Tools for Caregivers - Isovaleric Acidemia (IVA)
Tools Enabling Metabolic Parents Learning are books and videos designed to help you provide simple education for the caregivers of your newly-diagnosed patients with inherited metabolic diseases. Resources also available to your patients on medicalfood.com. Available in English, Spanish and French.
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TEMPLE Educational Tools for Caregivers -Tyrosinemia Type 1 (HT-1)
Tools Enabling Metabolic Parents Learning are books and videos designed to help you provide simple education for the caregivers of your newly-diagnosed patients with inherited metabolic diseases. Resources also available to your patients on medicalfood.com. Available in English, Spanish and French.
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TEMPLE Educational Tools for Caregivers - Methylmalonic Acidemia & Propionic Acidemia (MMA/PA)
Tools Enabling Metabolic Parents Learning are books designed to help you provide simple education for the caregivers of your newly-diagnosed patients with inherited metabolic diseases. Resources also available to your patients on medicalfood.com. Available in English and French.
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Guide to PKU Education Series
Looking for additional handouts to provide patients and family members to help improve their understanding of PKU and the special diet? These 'Guides to PKU' are color downloads that are tailored to the audience to help others better understand PKU. We suggest printing copies or requesting prints from your Territory Manager.
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PKU Diet For Life Guide
Especially designed for adults with PKU, Nutricia’s PKU back-to-diet resource booklet includes Q&A, inspiring patient stories, a science refresher, and more.
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PKU Activity Books
Help school-age patients learn more about the PKU diet with these fun, educational, interactive activity books.
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Periflex & Anamix Early Years Mixing Instructions
This easy to understand hand out provides families with instructions on how to mix Periflex & Anamix Early Years Formula and standard formula. Available in English & Spanish.
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Shake-Up Your Day with PhenylAde GMP Drink Mix
Fun, simple and great tasting GMP-based smoothie recipes.
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Periflex and Anamix Early Years Caregiver's Guide
A useful resource guide for caregivers whose child has been recommended to use Periflex/Anamix Early Years for the dietary management of their unique metabolic disorder. The guide includes more about the formula, tips, including burping, traveling and emergency. Also within the guide are sheets to help keep track of feeding, diapering and sleep.
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Italian Inspired Low Protein Recipe Book
Give your patients a taste of Italy with these classic Italian dishes modified to be low in protein. Recipes feature Loprofin brand low protein pasta, which is available in 8 shapes and is made in the heart of Italy.
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PKU and Pregnancy - A very special time in life
Starting with preconception all the way through lactation, this book provides tips for maternal PKU.
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Metabolic Disorder Fact Sheets
Download these Metabolic Disorder Fact Sheets to provide your patients will helpful information.
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Low Protein Playing Cards
A fun and enjoyable way to learn how to keep track of PHE amounts, protein intake and exchanges. These playing cards, based on the red-yellow-green light flash cards concept, where developed by Sharon Ernst, MPH, RD of the University of Utah. Food values are based on the Low Protein Food List by Virginia Schuett. The cards are available at no cost to your patients.
- To obtain these cards, please click here
Helpful Links
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Nutricia Resources
Recipes, Inspiring Stories, Nutricia Social Communities, and More
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Family Support Groups - National Groups (US and Canada)
Connect with these National (US and Canada) family support groups.
- HCU Network America
- FOD Family Support Group
- National PKU News
- National PKU Alliance
- National Urea Cycle Disorders Foundation
- NORD (National Organization for Rare Diseases)
- MSUD Family Support Group
- Organic Acidemia Association
- Global Association for PKU
- Canadian PKU and Allied Disorders
- Propionic Acidemia Foundation
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Family Support Groups - Regional Groups
Find a family support group in your area.
- Georgia PKU Connect
- Florida PKU Foundation
- The Mid-Atlantic Connection for PKU and Allied Disorders (MACPAD)
- Intermountain PKU and Allied Disorders
- PKU Organization of Illinois
- Indiana PKU and Allied Disorders Association
- Iowa PKU Foundation
- Minnesota PKU Foundation
- New England Connection for PKU and Allied Disorders
- Tennessee PKU Foundation