For the love & health of their children: The PKU caregiver study

Event date: 10/12/2021

Join us for a 1-h educational webinar with Julie Bolduc DeFilippo, MSW, LCSW discussing her research into the experiences of caretakers with PKU from a clinical social worker and PKU mom perspective. She will explain themes that emerged from her research such as diagnosis experience, stages of care and coping strategies as well as provide insight into how healthcare professionals involved in the care of PKU families could improve their clinical practice.

Participants will be able to:

  • Gain an understanding of the types of need experienced by caregivers of children with PKU
  • Understand any barriers caretakers face
  • Discuss ways, healthcare professionals can better support caretakers of individuals with PKU